so if you have been following this saga...you can tell i have had technical difficulties with posting pictures...i have come to the conclusion that if you use pics from your i phone then it does not transmit like your camera...anyway...on to the real reason for this post....
so we left on saturday, april 30, and spent the night in augusta, ga. it was cool...got to go by the masters...even though barney fife would not even let us put our feet on the ground...had to take the pics from the window...oh well....
got to charleston on sunday...the place we stayed was absolutely awesome...well i should say where stephen got to stay cause i had an extended hospital stay....so here we go...
we get to the hospital on monday, met with the doctor, discussed what we were going to do and on to pre op did i skip...yes i said skip...they looked at my veins and asked where my port was...i just kind of laughed...they took me on back to the anestheologist (i don't think i spelled that right) anyway...yours truly ended up with an iv in her left foot...let it be known that i did not cuss nor take the Lord's name in vain....i did call on Him, His mother and any other saint i could think of....the doc looked at the nurse said...you know she has a fever...i think she needs to stay overnight...nurse says no she does not have a fever...doc says she will in a minute cause i am not going through this again tomorrow....i loved this doctor...had my first procedure...nothing noteworthy...stayed the night...so on tuesday we had the big test...the ERCP...it showed that my pancreas was working beautifully...we were very scared that it was not working...it seems the problem is my stomach...you know that big thing i carry around....anyway when i eat food it stays in my stomach anywhere from 24 to 48 hours after it is supposed to have you know gone down the toilet...look i told you this was ugly....therefore, it rots, makes me sick, puts me in pain, yeast grows which is even worse...then when i am so sick that i go to the ER the pain meds they give me make it worse...it just makes my stomach slower...so i am in a pickle...what do you do....
there are some meds out there...i am taking one, but it has some side effects that i am scared to death of but have not had any of them - yet...there is another drug that is approved in canada and europe but of course our fda won't approve cause there is no money to be made it it...but i digress...
so our next step is to go to the university of missississippi...there is a doctor there, Dr. Thomas Abelle....he invented the gastric pacemaker...it is a modified heart pacemaker but it is surgically placed in the stomach to stimulate those nerves to make that nasty food move on...
so we have some answers and that is what we prayed for...so we journey on...
Journey On - Ty Herndon
Sometimes the mountains tower high above you
Sometimes the currents just too fast to swim
Life can carry you all kind of places.
Journey On.
Sometimes in the moment of your weakness
When you're on the edge of giving in
You hold your heart before it falls to pieces.
Journey On.
Journey On - hold your head above the water
Journey On - you can weather out this storm
Journey On - there's a better day coming
A better world than you have ever known
Journey On - someone's waiting by the river
Waiting there to take you by the hand
So make the most of all that you've been given
Journey On.
Anybody's ship can take on water
You gotta make the choice to sink or swim
Just grab a piece of rubble from the wreckage
Journey On.
Too many times your heart will leave you stranded
You bear the scars of where you've been
Don't be afraid to ask for new direction
And Journey On.
Journey On - hold your head above the water
Journey On - you can weather out this storm
Journey On - there's a better day a coming
Oh, a better world than you have ever known.
Journey On - someone's waiting by the river
Waiting there to take you by the hand
So make the most of all that you've been given
Journey On.
Journey On -
Journey On.
3 comments:
I am so sorry for everything you are going through! I just can't imagine. I love that song you posted the lyrics to. The inspiration behind the song is about a former NFL player that was diagnosed with ALS....the same thing Troy's dad had.
When are you going to Mississippi?
I pray you will continue to get answers.
Love you!
Thankful for the blessing of answers....will continue to pray for you on this journey! Keep us posted about when you will be going to Mississippi. Love & prayers!
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